So Tiernan definitely has been having seizures.
Dr. Korol is not surprised by this.
She did say that the EEG looked mostly just like she expected....
...but a little bit not.
That is the Tiernan way.
There's most, there's some and then there's Tiernan.
He is writing his own version of everything in this world.
He never follows the rules.
So Dr. Korol wants him to have that MRI to get some more clarity on what is happening.
She is mostly convinced these are still the Benign Rolandic Seizures, but the EEG was just different enough that they could be Full Body Seizures.
Either way she is not eager to prescribe medication unless they start happening during the daytime.
A seizure in and of itself is not the dangerous part. If they only happen during sleep, there isn't really much of a risk, aside from falling out of bed. Daytime seizures are scary because there is always the risk of injury due to falling. So for now we will lower his bed (we have it on "stilts" so his lego table could fit underneath) and be on the lookout for signs of more seizures.
HOW TO SPOT A SEIZURE:
If his pillow is wet in the morning that is a pretty good sign of seizures.
Put some sort of monitor in his room so we hear/see what is happening.
If, during the day, he zones out, we should pinch him. If he responds, it's not a seizure. If he does not react, it is an Absence Seizure.
OTHER TIDBITS OF INFO
"He CAN NOT be sleep deprived. That is absolutely a trigger for seizures."
Therefore, Doctor's Orders state his bedtime must be no later than 7:30 on weeknights.
He accepted that news better than I expected.
MRI is yet to be scheduled. The team wants him admitted and have sedation with his cardiac anesthesiologist rather than just the quick sedation. (This is not a surprise to me, and I tried to tell the scheduler he needed that, but oh well. So the difference is he will have to spend the entire day there instead of the 2 hour special under IV sedation.
In the meantime, Dr. Korol said call if we think he has had any seizures, but otherwise, given a clear MRI, we would check back in 6 months.
Something tells me we will be seeing her much sooner than that.
This kid takes it all in stride. Just another thing. No big.
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